Ahhhhh….Saturday morning. The day we get to loll in bed, snuggling and drinking coffee and catching each other up on the week’s news. We jabber endlessly about everything under the sun, make plans for the future, and map out the weekend. My favorite day.

During the week, Tom wakes up and gets us coffee. He brings a carafe of it up to me in bed before he gets ready for work. This morning, I woke up first. My plan was to sneak downstairs, brush my teeth, get the carafe and bring it upstairs to my sleeping sweetie, who I’d awaken with a kiss.

It didn’t exactly go according to plan. With a the finesse of a delicate ballerina, I started at the top step, and WHAM! My feet went out from under me like they were covered in banana peels. In fast-motion, I slid down six or seven steps, making a nice loud BOOM, BOOM, BOOM sound as my head hit each one. Nice. Smooth. Tom leapt out of bed and ran down to help me. All I could think about was that I hadn’t brushed my teeth yet, so I wouldn’t talk to him to tell him that I was okay. Besides, I’m still not sure if I am okay.

Even the tiniest misstep can have devastating effects on me. Last week, I misjudged the height of the step on my mother’s back porch and sort of jarred my body. It made me cry, because I knew that a little mistake like that could cost me for a long time, because of the Fibromyalgia. And it did. Of course, I then I get into the whole cycle of trying not to see it that way, trying to change my thinking so as not to make what I’m anticipating (from past history) come to pass. But it always does. And it’s happening again today, in spades.

I have to go lie back down now.


I absolutely, positively despise taking medications. But when you’re desperate, you’re desperate, so over the years I’ve experimented with this or that Rx to see if it brought relief. I’ve narrowed it down to two, in the very lowest dosages money can buy. One is Lisinopril, for the high blood pressure that sometimes goes along with fabulous Fibro, and the other is Lexapro, an anti-depressant which seems to keep me from jumping off of tall buildings when the pain starts getting to me.

On Friday, my doctor gave me some samples of Lyrica, which is touted as being the first and only Fibromyalgia drug. It’s for nerve pain, and I have to say that it seems to be helping. I hate taking anything that makes me feel not like “me,” and I’m probably not taking as much as I should, but so far, so good. I’m still my moody, cranky self, thank God. The only two drawbacks that I’ve seen so far is that I want to eat everything within a ten-mile radius, and it makes me very groggy. I’m experimenting with taking it at night, so I can sleep through the hunger pangs. This seems to help, but while I seemed to have some actually energy earlier today, I conked out at about 3 o’clock this afternoon for about an hour, and I still feel sleepy. Hopefully, this is just an initial reaction, but in the meantime, it it feels really good to have a bit of relief. I’ll keep you posted.

I rode my bicycle 15.73 miles on Saturday, and 16.5 miles on Sunday, and so far, I feel great!!!!!!!! Please, oh please, oh please….let this be a remission!

So, I want to ask a bunch of nosy questions to find out how many of these crazy symptoms I have are shared by others. We all know about the pain and the fatigue, but I’d like to know a little more. All of these questions are based on either my own experiences, or things I’ve read that are supposed commonalities among people with Fibro. Maybe by comparing notes, we can come up with some answers.

I can’t figure out how to do this on WordPress as a form, so I’ve answered my own questions below in a stupidly simple format, by editing and copying the questions, and posting my answers in the “Comments” section. You can also e-mail your answers to moonbeam.mcqueen at yahoo. Feel free to skip over any questions that you deem too personal or difficult. Also, feel free to add any other thoughts you may have. I’ll post the results later.

Have you or do you experience any of the following symptoms?

1: TMJ

2: Irritable Bowel Syndrome

3: Other digestive issues (i.e., Reflux)

4: Depression

5: Pain in places not listed on a trigger point chart (example: soles of feet)

6: Lots of mental activity during sleep.

7: Sudden bouts of fatigue

8: Do you have flares after a stressful situation? How long do they last?

9: Blotches, hives, or other weird skin issues .

10: Lack of Coordination/ Clumsiness

11: Fogginess/ Forgetfulness

12: “Female Problems”- gynecological issues

13: Energy bursts followed by a complete physical meltdown.

14: Frequent earaches

15: Chest pain/ high blood pressure

Any other weird symptoms?

Approximately how many times have you been to the Emergency Room in the past five years?

Have you experienced any trauma that you can trace as the cause of your Fibro?

I read somewhere that a majority of women with Fibromyalgia were extremely close to their mothers as children. As adults, they still tend to still be close, but have a complicated relationship. Is this true of you?

Are you on medications? Do they bring you relief?

Approximately how many doctors and specialists have you seen in the last two years?

Do you feel guilty about your Fibro?

Do you spend less time with friends and family since the onset of your Fibromyalgia?

Has Fibromyalgia changed your employment situation? How?

What brings you the most relief?