Comments on: Anger, Unlimited

By: Chronic Health Blog » Archive » 102 Chronic Illness Resources

Chronic Health Blog » Archive » 102 Chronic Illness Resources — Fri, 22 Feb 2008 14:26:57 +0000

[...] Anger, Unlimited. Today, I’m tired of thinking about all of those people who have it so much worse than I do. For [...]

By: moonbeammcqueen

moonbeammcqueen — Tue, 19 Feb 2008 03:10:21 +0000

@ Nick: Thank you– I’m so glad you got approved!!! I don’t know how in the world to go back that far in my history. So many towns and doctors and hospitals.
Did you provide actual records, or was some of this from memory?

By: Sometimes Saintly Nick

Sometimes Saintly Nick — Sun, 17 Feb 2008 07:05:16 +0000

I was approved for Social Security disability (even though I’ve never considered myself disabled) 5 months after I applied. I was coached by a woman who is wheelchair-bound but still took 3 years to get it and has been coaching other applicants since. She had me prepared with a medical history including Md and hospitalizations going back 30 years, plus other relevant information.

I was amazed, but pleased, when I was noticed of my approval.

By: tammyrenee

tammyrenee — Sun, 17 Feb 2008 05:27:58 +0000

Well, gee… now I don’t have to write a vent post cause you’ve said everything I was feeling, ha, ha. Good thing, too, cause my hands are already going numb. I’m still in limbo with my SSDI. I thouht we were going to be moved by now and I certainly don’t want to have to change all my contact info mid-stream, so I’ve put it on hold. Maybe I just don’t want to keep facing the rejection, too. Wish you the best and YES… get it started now!

By: moonbeammcqueen

moonbeammcqueen — Thu, 14 Feb 2008 02:24:36 +0000

@ Christy: You hang in there too. It really gets hard, doesn’t it? Today’s been rough, tomorrow will be better. That’s my mantra! Thank you for stopping by!

By: butterfly2007

butterfly2007 — Wed, 13 Feb 2008 19:15:26 +0000

Wow, Your words really touched me. I have RSD, and am in chronic pain everyday. It never lets up and is always there. Thank you for telling the world how it is… We can’t always fake a smile… Hang in there!

Christy

By: moonbeammcqueen

moonbeammcqueen — Wed, 13 Feb 2008 01:44:40 +0000

Amen!

By: Abbe

Abbe — Wed, 13 Feb 2008 00:23:18 +0000

and laugh as much as possible!

By: moonbeammcqueen

moonbeammcqueen — Tue, 12 Feb 2008 23:48:41 +0000

@ Abbe: I’m sorry that you’re going through all of this. It really sometimes seems that the cure is worse than the condition.

To me, the main thing is to do exactly what you’re doing, which is to trust yourself and put your care into your own hands. It may not lessen the pain, but the stress reduction is worth it.

By: Abbe

Abbe — Tue, 12 Feb 2008 23:20:00 +0000

I understand your sentiment. I was diagnosed over the summer with Rheumatoid Arthritis to go along with Psoriasis. Somedays I’m not sure which bugs me more, the itching or the pain or the the thought that I am way too young for any of this shit! Of course, I could be 90 and I’d still think that. Flair ups suck!
I’ve been in pain for way longer than I’ve had a diagnosis. Sometimes I joke that pain is the most reliable thing in my life…I can always depend on it.
The worst thing is the medical community. My rheumatologist put me on Methotrexate which made me miserable…he insisted that he wanted to treat my RA aggressively and wanted me to to go on Enbrel. I said no way..so he upped my Methotrexate. That made me even more miserable and actually seemed to made the symptoms worse. I finally said “enough”…took myself off of the Methotrexate and stopped going to this doctor. So next is acupuncture and alternative options…currently trying Green Tea extract. I’ll give it a month or two to see how it works.

Good luck…listen to your own body!

Abbe